Privacy Policy
Not medical advice. Condition Connect is an invitation-only product for education, community, and personal organization related to inherited retinal diseases (IRDs). It is not for clinical diagnosis or treatment decisions.
Who we are
Condition Connect Inc. (“Condition Connect,” “we,” “us”) provides web and mobile products for people affected by IRDs, their families, and related communities.
General: hello@conditionconnect.ai
Support: support@conditionconnect.ai
Invitation-only access
Access to Condition Connect is by invitation. Downloading the app or visiting the website does not by itself authorize use of product features such as Communities, Track, News, or Chat. We process invitation-related email addresses and activation status to enforce that access model.
What we collect
Depending on how you use the service, we may process:
- Account data — email, authentication credentials (via our auth provider), name or handle, date of birth (for age rules), and profile details you enter.
- Invitation and referral data — invitation codes and status, alias emails you authorize, and limited referral suggestions you submit for our review.
- Messages and community content — text, posts, comments, reactions, and related metadata you create.
- Documents, notes, and health-related organization data — files and notes you upload for personal tracking (for example visit notes or images), metrics you enter, caregiver links you create, and AI analysis results you request.
- Device permissions you grant — microphone (voice notes / dictation), camera and photos or files (attachments / uploads), speech recognition as provided by the operating system, and optional location or contacts when you choose to share them in chat.
- Notifications — device push tokens so we can deliver notifications you enable.
- Technical and usage data — information needed to run and secure the service (for example session state, product-interaction events with free-text minimized or sanitized, and crash or diagnostics if enabled).
How we use data
- Provide sign-in, invitation enforcement, chat, communities, learning content, news, digests, and condition-tracking features.
- Provide educational AI features you choose to use (for example Ask Mira or document understanding).
- Improve reliability, security, and product quality.
- Communicate about the service (for example account, invitation, or support messages).
- Moderate user-generated content and respond to reports.
We do not sell your personal information.
We do not use App Tracking Transparency advertising identifiers to track you across other companies’ apps and websites for advertising.
Sharing and processors
We use service providers to operate the product. Providers process data only to provide those services under their terms and our instructions. Depending on features you use, processors may include:
- Infrastructure and database — Supabase (authentication, database, file storage, edge functions, realtime).
- App platforms — Apple and Google for sign-in, app distribution, and push notification delivery.
- Email delivery — transactional email for invitations, access notices, digests, and support-related mail.
- Artificial intelligence — for product health, document understanding, and educational assistant features, we use Anthropic (Claude) under our current configuration. Content you submit to those features (for example questions, prompts, or document bytes) is transmitted to that provider for processing. We configure commercial / API paths intended not to use your content to train public foundation models for our marketing; provider practices are also governed by their terms and any data processing terms we put in place.
- Operating system speech — if you use dictation or speech features, Apple or Google may process audio under your device settings.
Some operational features (for example bulk content translation tooling used by operators) may use additional model providers. Those tools are not the default product path for clinical document analysis or the in-app educational assistant for ordinary users.
We may disclose information if required by law or to protect the rights, safety, and security of users and the service.
Health-related information
If you upload clinical or health-related documents, or enter health-related details, that content is sensitive. Access is limited by product controls (your account, people you invite where the product allows, and technical authorization checks). When you use AI analysis or the educational assistant, relevant text or document bytes may be processed by Anthropic as described above.
Joining a gene- or condition-related community can associate your account with that topic. Treat community membership as potentially sensitive.
Condition Connect is not presented as a HIPAA “covered entity” product in App Store or marketing materials. Availability of business associate agreements with infrastructure vendors does not by itself make the consumer product a covered healthcare service. Upload only information you are comfortable storing under this policy and our Terms.
We do not use your clinical documents or private messages to train public foundation models for our own product marketing.
Push notifications and email
Push notification titles and bodies are designed to be generic where the product allows (for example “New message”) so lock-screen text does not reveal private message content. Email subjects and bodies for some operational notices are also kept generic; in-app context may be more detailed.
Retention
We retain account, community, chat, and health-organization data while your account is active and as needed to operate the service, comply with law, and resolve disputes. Operational logs and caches are kept for limited periods according to our infrastructure and provider settings. Contact us for current practice if you need specifics for a deletion request.
Your choices
- Edit profile information in the app where available.
- Delete content you control where the product allows (in-app delete may not remove every server copy immediately; some related rows may require support follow-up).
- Request account or data deletion in the app where available, or by emailing support@conditionconnect.ai or hello@conditionconnect.ai.
- Revoke microphone, speech, camera, photo, location, or contacts permissions in your device settings.
- Turn off or avoid AI features (document analysis, Ask Mira) if you do not want that content processed by our AI provider.
- Disable push notifications in device or in-app settings where available.
Children and teens
You must be at least 13 years old to create or maintain an account. The service is not directed at children under 13. Users ages 13–17 may have accounts with additional messaging and discovery protections. Parents and guardians should review use by teens.
Security
We use industry-standard measures such as encryption in transit and access controls (including invitation checks and row-level authorization where implemented). No method of transmission or storage is 100% secure.
International users
Data may be processed in the United States or other locations where our providers operate. If you use the service from another country, you understand that your information may be transferred to those locations.
Changes
We may update this policy. We will post the new “Last updated” date on this page. Continued use after changes means you accept the updated policy.
Contact
Condition Connect Inc.
Support: support@conditionconnect.ai
General: hello@conditionconnect.ai
Web: https://conditionconnect.ai
Support page: https://conditionconnect.ai/support